They say when you hit bottom, there is no where to go but up.
(Did they forget about sideways?)
I cannot catch a break. I. can. NOT. catch. a. break.
And people, I am so discouraged, I am just about done. I cannot Pollyanna one step further.
First, the boy. Who was so sweet and loving and perfect. My son. My baby. Who came home so damanged. Who dealt with his own trauma by inflicting it on others. Who hurt my other children, and wreaked havoc on our family. Saturday was his third “Gotcha Day,” but there was nothing to celebrate. He can never come home to us. It has taken us the last 22 months to come to that conclusion. Divorce has hovered like a vulture over us as we have dealt with this tremendous stress. We have fought for our son. There has been no season of our life that has tested us as this one has. I cannot ask you to understand it. I can only pray that you never have to.
The illness. RAD, you are a motherfucker. I hate you with every ounce of my being. You have stolen my son from me. He is an Angry Boy. He is manipulative. He rages. He lies. He shows no remorse. He is argumentative. He is hypervigilant and hyperactive. He chatters constantly. He acts silly when anxious. He pulls out his own hair. He smears feces on the walls. He is sexually “inappropriate”. He pees where he shouldn’t, on purpose. He pits adults against each other. He makes false allegations of abuse. He destroys his belongings. He steals. But RAD, it is not enough that you have my son. No. You have my daughter, too. While he is a child of abuse, she is a child of neglect. She cares about nothing and no one. She thinks she’s smarter than everyone. She’s self-reliant, because she trusts no one. She’s extremely passive aggressive. She’s utterly intolerant of rules or authority. She’s shallow and vain. She thinks relationships with people are a waste of time. She wants nothing but to go back to Haiti. She’s bossy. She’s hypercritical of everyone around her. She lacks empathy for others. She’s very manipulative. She’s awesome at verbal insults and stabbing people in the back. She is hard, so, so hard to love.
Financial aspects of mental health care: Dude. Do not have mentally ill kids. It’s expensive. I cannot tell you how much time I spend trying to find help for my kids, and trying to coordinate payment for it, and how much money we actually SPEND on it. But I will tell you that the neuropsych evaluations for our kids were $2800 and $2000 each. (I think our insurance reimbursed about $900 the first time. I haven’t gotten the second reimbursement back yet). This just tells you what’s wrong with the child. Ours were excellent, and well worth the money we spent. AngryBoy would not have gotten into his residential treatment facility (RTF) without it. Prior to that, he had been misdiagnosed several times ($$ that was a waste of time). Then remember AngryBoy’s first 44 days at the RTF were “covered” at 90% by our private insurance? Except that this was 90% of the “reasonable and customary” rate? I fought with the insurance company for 6 months (to no avail), as our portion of the bill was $7000. Ouch. Then Medicaid kicked in. God Bless Medicaid. Medicaid covered us, but then we MOVED (idiots) because dh got a promotion. Which meant we had to apply in a new state. But that new state said AngryBoy wasn’t eligible since he never actually LIVED in the new state. So we tried to give temporary guardianship to his uncle in the RTF’s state, but despite being told the application would be approved, it got denied. Then we asked if we could give temporary guardianship to friends in the state that we moved FROM, since they were already providing benefits.. and they said, yes, but only if the friends were from the same county we lived in (they weren’t).. and in the meantime.. we were forced to update our address.. and had his Medicaid benefits CUT OFF. Which means we are currently paying the RTF $302/day. OUT.OF.POCKET.
Yeah. That’s what I said, too. Right before I started bawling.
Let’s talk about something else. How about my house. Which one, you say? HA, HA! Because I STILL HAVE TWO! Yes, life IS a bed of roses. And sometimes the economy sucks, and the promotion that looked so awesome is maybe NOT so awesome, because the relocation company does not ACTUALLY want to buy your 45 year old house. So they do a ridiculous home inspection, and ask you to fix a quadrillion things, and then they totally lowball you anyway. And THEN they tell you that they think they found mold in the basement, so they need to do a full mold inspection. And you laugh, because, WHY NOT?! Everything else that could possibly gone wrong, has! So they do a mold inspection, and they say, basically, HOLY SHIT, THERE IS MOLD EVERYWHERE!!! And they tell you it will cost $10,000 to “remediate” it, and they’ll have to rip out the finished basement, and this will DEFINITELY affect the buyout price, and by now you have figured out that this is a total sham, but now you have this stupid report that has to be disclosed to buyers (goodbye, buyers!) unless you can prove there is no mold. So you pack up your children and drive six hours back to your old house that you’re totally homesick for anyway and you wish you’d never moved from, and you spend two days bleaching the hell out of everything and ripping up carpet and sealing basement walls and replacing insulation and making sure the basement is dry as a BONE so that you can pay a different mold inspection company $800 (ack! that’s 2.5 days at RTF!) to come and make sure there is no mold. And you decide “screw the relocation company, if the house doesn’t sell for a reasonable price by 9/30, we will rent it instead.”
Some days I feel like Job. Is that overly dramatic? But, for example, I took Petite for her neuropsych eval, and as part of her writing, she wrote, “I don’t care about anyone in my family except Angryboy.” And while this is something I knew, this is my daughter. This is a child I waited for for a year. This is a child I have lived with and loved for three years. She doesn’t hate me. She just feels nothing for me. It is worse, somehow. And when I sat with the doctor that day, he told me, “She is going to be a tough case. You know that conventional therapy doesn’t work with these kids. Play therapy is not going to work. Talk therapy is not going to do it. Family therapy is not going to help. You could go to (clinic near you), but you are beyond that. You could send her to RTF, but they would send her back in two years and say she is unreachable. She does not want to form relationships with people. She does not want to be in a family. We are going to have to really reach and and do something different with her, and YOU are going to have to do the work with her. I’m really going to have to think about what this needs to look like..” I just thought, “Why, God? WHY? After all we’ve been through with AngryBoy, this is what you’ve got in store next?” I try to remember that God has a plan and that I don’t have to understand it, I just have to do the best I can with what I’ve got and lean on Him for support. But sometimes it just seems like it is ONE THING AFTER ANOTHER and there is no room to CATCH MY BREATH before I get something else dumped on me, and I don’t want to say that it is hard being me, but sometimes (!) life is a little challenging!
But really. My kids have enough food to eat. I have a beautiful house to live in (TWO OF EM!) I have a husband who loves me. He has a great job with benefits. We have our health. I have lots of anti-depressants. (HA!) My dogs think I’m awesome. Tonight is the SYTYCD finale. I am still running. Jesus loves me/this I know/for the Bible/tells me so.


22 Comments
August 5, 2009 at 3:23 pm
It’s heartbreaking just to read this. I’m so sorry for all of you. I hope at least something improves soon. I’m so impressed by how much you can withstand.
August 5, 2009 at 3:29 pm
I read this and want to cry. But then something stops me. Cuz I think any woman who can write like you do, talk about like you do and even laugh about it (if you don’t laugh, you cry, right?) has got to be a kick ass strong person.
I am impressed at your strength. Others would crumble and fall at what you deal with but you continue.
Wow.
That’s awesome.
Hallie
August 5, 2009 at 3:49 pm
Honey. I’m so sorry. Somehow … oh I don’t know. Sometimes life just sucks, and that is a major under-statement.
I’d say something sympathetic on my blog, but recently that seems to be a big ole sign to trolls, so I am not going to, but I want you to know that is why.
August 5, 2009 at 6:13 pm
I’m so sorry. I don’t know what to say but I’m going to put together some words in a prayer to the God who controls the universe. Keep the faith, friend. Hugs. ~Kari
August 5, 2009 at 6:24 pm
Been there, done that. Not to the extent financially, but to 3 siblings with RAD, RTF, therapists, doctors, heartache, grief and abuse. No one signed on for this, but I believe God has a call on our lives. I tell my kids this is not about them. They are responsible for their lives and I am responsible to my God for being obedient to His call. It’s the hardest thing I’ve ever done. I understand every feeling you put into words and the real hard ones you didn’t. The guilt, the betrayal, the hoplessness. But one day you may be the only person standing in between heaven and hell for your child. Don’t give up. I know you won’t.
August 5, 2009 at 7:18 pm
OMG… I cannot imagine the heartache. All I can say is that i will definitely pray something snaps in the right direction… hugs
August 5, 2009 at 7:35 pm
What a amazing woman you are! I will be praying for you and your family.
August 5, 2009 at 8:41 pm
I am so sorry that things suck so badly. I am praying for you and your family.
August 5, 2009 at 8:52 pm
Life does suck sometimes. What doesn’t kill you makes you stronger and all that jazz. May peace be with you.
August 5, 2009 at 9:29 pm
Thanks for sharing. A wise person once told me “what doesn’t kill you makes you stronger. ”
Sounds cliche, I’m so sorry for what you are going through. Truly, I have nothing to complain about in my life. Nothing. Please continue to share and give strength to those you share with.
August 5, 2009 at 10:54 pm
Man…I admire you…not for withstanding all of it (that is admirable enough) but for that last paragraph ’cause I’d be sucking my thumb in the closet….umm…with a bag of doughnuts!
Hoping…wishing…it all lets up sometime soon so that you can breath again. Life’s a bitch and then…well…and then you gotta keep putting up w/ her.
Hugs
August 5, 2009 at 11:54 pm
I have been trying to come up with words of comfort and wisdom all day, but they all seem so inadequate. Rather, let me offer that your burdens will be in my thoughts and prayers. I am so sorry…
August 6, 2009 at 12:32 am
COREY!!!! This sucks!! It sucks ASS!!!!! I am so, so sorry. I wish I lived near you. I would bring you pizza and ice cream and a great big hug. And a Xanax, if you wanted it. But keep that one on the down-low.
And seriously, when times are tough, thank God for reality tv.
My heart is heavy for you and I am praying.
August 6, 2009 at 7:12 am
love.
you know where to find me if you need to vent. let me know if we can help.
love.
love.
love.
love.
August 6, 2009 at 7:52 am
I am breathless with anger for you Corey. This situation is beyond terrible and I wish there was more that I could do than pray. But pray I will. For your strength, for your children. But dear God, I wish I didn’t have to.
Tracy
August 6, 2009 at 5:12 pm
Corey,
any way you can contact me so we can talk? kbaker@theofficenet.com
August 11, 2009 at 7:31 am
Corey,
A couple of weeks ago I was having a meltdown over some weird skin problem and sitting in a tent whining and moaning…when you came with your cell phone and a list of pharmaceuticals that might help me to know for another trip to the ER. It did.
Later I wondered how you do it. Smile and keep on moving. I wish I had more time with you.
Know I’m praying for something, lots of somethings, to give.
Hugs,
K
August 13, 2009 at 7:29 pm
Corey,
I am really sorry you are going through all of this. I can’t imagine having to deal with everything you have been. I will lift you and your family up to the Lord to show you how much he loves you and is with you, He will never leave you or forsake you.
Love,
Lisa
August 14, 2009 at 2:31 pm
I’m so sorry you are going through so much pain & dispair right now. I have no words of wisdom to share with you but would sure like to share your burden.
May you feel your load lighten as we help carry the load for awhile.
Hugs, Laurie
August 17, 2009 at 10:34 pm
sorry.
no smart things to say. just sorry.
October 20, 2009 at 4:29 am
Hey, do you still own this house? Because we just relocated state to state and have a child on medicaid. No matter where you stay, your legal address is what counts, so you can ‘move back in’ to this house and just spend time at the new house. I am absolutely for certain that your 45 year old house is gonna be a cheaper expense than RTC….I know this is WAY late, and it’s totally possible this has all ready been rectified and I just haven’t read that far, but thought I’d put it out there.
Your story is so very familiar, you do an awesome job of putting my feelings into words, actually I think you have my children, except they aren’t mine any more.
October 20, 2009 at 5:03 am
We do still have the house.. it just got to be a mess.. we had notified Medicaid that we had moved, so they cut off from State #1. We now, after a long battle, finally have Medicaid in State #2. The house (which never sold) is now a rental property.. which doesn’t quite cover the mortgage, but at least does not bleed us totally dry.